Final exam Flashcards
What is palliative care?
Family-oriented, child-focused care that enhances quality of life and attends to suffering
what are the 9 things pediatric palliative care does?
- symptom management during illness
- advanced care planning
- coordination and continuity of care until death and after
- enhanced communication
- improved accessibility to care
- psychological and spiritual support for child and family
- early opportunities to create memories
- respite care
- bereavement care
who are the 4 types of children who benefit from palliative care?
- conditions that have a high treatment fail rate
- conditions where premature death in early childhood is inevitable but the child can enjoy normal activities with a reasonable QOL
- Premature Death Is Inevitable and Treatment from the Time of Diagnosis to Death Is Focused Purely on a Supportive and Palliative Model of Care
- irreversible and nonprogressive conditions Causing the Likelihood of Premature Death Through Susceptibility to Multiple Comorbidities and Complications
3 facts about first nations youth and Suicide
- the number of suicides is highest among FN
- out of 2000 approx 100 attempt suicide every 5 months
- the age range is usually 11-71
what were the 3 leading causes of death in 2012 for ages 13-19
- accidents (unintentional injuries)
- intentional self-harm (suicide)
- assault (homicide)
what are emotional rubberneckers (degroot 2014)
online voyeurs who visit the FB memorials of strangers or distant acquaintances to read what others write and to post their own messages of grief
what did weinburg 1972 suggest? (homophobia)
homophobia to describe the irrational fear of being near a homosexual
BUT
today, this is used to describe any negative acts of attitudes brought against the LGB community
what is heterosexism?
an ideological system that rewards and privileges heterosexuality while devaluing and punishing nonheterosexuality
minority stress theory
Meyer 1995
minority stress theory as a model to describe the
distress that gay men experience as a result of social stigma
what are 3 psychological processes that underlie minority stress
- internalized oppression (the direction of negative societal attitudes toward oneself)
- perceived stigma (one’s vigilance and expectations of rejection, discrimination, and violence)
- feelings of rejection and fears of violence
how do infants (birth-1) experience death?
- have no concept of death
- sensitive to routine changes
- cry and are irritable
- in the midst of grief they have express joy and engage in play
-React to separation from their parents and caregivers and to the emotions of those who remain following the death of a close family member; how the death took place is irrelevant
how do toddlers (2-3) experience death?
-do not understand death is permanent
- are vulnerable and responsive to sadness, fear, anger, and confusion of caregivers
- Often respond to the caregiver’s strong negative emotions with anxiety and irritability
- may regress in previously achieved ability
-Able to be happy and wholly immersed in periods of fun activities with peers and family members, laughing and focused on play
how do preschoolers (4-5) experience death?
- view death as temporary and reversible
- Do not understand that when people or things are dead they do not eat, sleep, or breathe
- may persist to believe the family member is still alive
- May temporarily regress to previous developmental stages and have separation anxiety, problems settling at bedtime, and issues with soiling or urinating clothing
-from an egocentric worldview, may attribute the death of someone they know to their own thoughts or actions.
how do school-age children (6-12) experience death?
- may articulate worry for the safety of friends and family
- have less energy
-struggle to sleep - find it hard to focus
- loss of appetite
- loss of interest in hobbies
-Can verbalize thoughts and feelings related to the deceased and questions related to death and what happens afterwards
how do adolescents (13-19) experience death?
- understand the bioscentific aspects of death
- Explore existential questions of life’s purpose and what happens after death, seeking an integration or clarification of family and personal values
- may resort to substances to cope
- decrease in concentration
- disruptions of sleep, appetite, and energy
