final Flashcards
Being mortal reading
- 1991, Bill Thomas working as medical director at Chase Memorial Nursing Home
• Bill Thomas had oppositional defiant disorder
• Went to SUNY Cortland (state college) for the good times → did well, ended up being their first student to go to Harvard med
• Had ideal of self-sufficiency and conditions at nursing home contradicted his ideals → believed good life is independent
• 80 severely disable residents; Half were physically disabled; 4/5 had Alzheimer’s or other cognitive disability - Found nursing home depressing → resident devoid of spirit and energy
Thomas’ proposal attacked the 3 plagues of nursing home existence:
1) Boredom
2) Loneliness
3) Helplessness
- 3 plagues are social, not very measurable
- Proposal included 2 dogs (1/ floor), 4 cats (2/floor), 100 birds, changing all fake plants with real ones, a garden
• Program called “Eden Alternative”
- Thomas wanted “Big Bang” → bring in everything at once
• Pandemonium → birds came before cages, then cages came, but were not assembled
Complications with Eden alternative
- Nurses did not want to clean up after the animals
- Eventually everyone decided to work together on the task of bringing life into Chase → worked, noticed difference in residents
Results of Eden alternative
• Number of prescriptions required per resident fell to half of control
o Psychotropic drugs for agitation decreased
• Total drug costs fell to 38% of comparison facility
• Deaths fell 15% percent
o Thomas believes difference in death rates is due to fundamental human need for a reason to live
- Story of Mr. L - Doesn’t want to eat or get out of his chair, arrives at same time as birds, eventually starts talking to staff telling them about what the birds like, offered to walk dogs, 3 months later he went home
o He came out of depression
Conneticut nursing home - 1970s
nursing home gave each resident a plant
• Half told water it, other half told it was staff duty to water it
• Half with responsibility → more alert, active, appeared to live longer
- Mr. L lost wife and home, sent to Chase, depressed, then started caring for his bird, program helped him → he was discharged 3 months later
• Boredom → offers spontaneity
• Loneliness → offers companionship
• Helplessness → offer chance to take care of another being
- 1908 – Josiah Royce, Harvard philosopher wrote book “The Philosophy of Loyalty”
- We all seek a cause beyond ourselves → was an intrinsic need; gave life meaning
- Transcendence → above self-actualization in Maslow’s hierarchy → transcendent desire to see and help others achieve their potential
Newbridge on the Charles → old home in Boston suburbs
• Divided into pods (called households) with no more than 16 people
o Less than 20 people = less anxiety/depression, more socialization, increased sense of safety
• Shared grounds with private school kindergarten – 8th grade
3 concepts of autonomy
1) Free action – living independently, free of coercion and limitation
2) Freedom to be authors of our lives – Ronald Dworkin
o Want to retain freedom to shape our lives in ways consistent with our character and loyalties
Pain vs suffering (social determinants)
- Pain: - can measure/ evaluate to a degree
1) Highly unpleasant physical sensation caused by illness or injury
2) Mental suffering or distress - Suffering: - state of undergoing pain, distress, or hardship
- Suffering is broader
socially different; has a more social origin, pain is more medical term
shaped by what is considered a hardship
emphasis on experience and perception of pain
Loneliness and social isolation
Loneliness – subjective perception of isolation – the discrepancy between one’s desired and actual level of social connection; quality over quantity for relationships
Social isolation – few social connections or interactions; objective
More of us living alone and growing old alone
We value our privacy and independence
In Guinea, no one is homeless, unless they have a severe mental illness
o Anyone that is distressed will be taken in
o Muslim ethic to take people in, take care of them and make sure no one sleeps on the street
Social isolation: an objective risk factor - Impacts?
Impacts on ability to self-regulate
o Comfort foods (sugar, fatty foods) can access the pleasure centers of the brain, which can help people who are suffering from social isolation
o Alcohol can make you feel better, and self-harm can dull the pain
Impacts on biomarkers
o Stress hormones, inflammation, blood pressure
o Chronic inflammation = Increased RISK heart disease, stroke, type 2 diabetes, suicidality
Loneliness - subjective - Impacts?
- Impacts autonomy by eroding ability to perform basic tasks of living – results of study over 6 years with 1604 adults
o Correlation between self-isolating and stress hormones and blood pressure increasing and chronic inflammation – can lead to chronic heart disease, type 2 diabetes
o Compared those who identified as lonely and those who did not - Those who identified as lonely had more impacts and were usually the elderly
- Elderly of 65+
- Harder to get out of bed, other basic tasks of living harder
- Sleep disruption leads to inflammation and increases risk of heart disease and immune response
- Autoimmune disease and feeling lonely = disease can get worse
3 wishes project - Debra Cook - ~6 yrs ago
- Objective: bring peace to the final days of a patient’s life and ease the grieving process
- ICU introduced in 1980s – ideally brought into ICU to treat you until you move to a different section
Not created for dying
Suffering of surviving family members higher after death in ICU versus hospice care
Intensive care specialists increasingly involved in dying - 65% Canadians will die in hospitals
- Patients state their 3 wishes before they die so they get a say and eases the grieving process
- Personalized approach to care
Indian horse - reading
story of boy who’s brother is kidnapped and taken to a residential school, comes back with TB, dies
- more details in your notes
- Richard Wagamese; Oct 14, 1955 – March 10, 2017
• Ripping apart of family → symbolic of ripping away from family structures and culture that is due to colonialism
Culture
- Sum of total habits and expectations
- Shared, symbolic, learned, dynamic (not static)
• Constantly changing; reproduced in day-to-day interactions
• Intergenerational – passed on from parent to children - Culture is system/ collection of values, practices, norms, and ways of being and experiencing the world
• Shared amongst group of individuals
Culture is learned implicitly and explicitly
- Told what success/ failure is, good/ bad
- Certain foods are cultural
- May react differently to certain things (e.g. how women dress, what is normal)
Iceberg theory of culture
- proposes that 9/10 of culture is not seen
o Most of what we think of culture is at top of brain, but a lot of things we don’t realize about what we’re doing that are based off of what we learned and our culture
o Don’t learn them, but acquire them as we grow up; learn what we think is fair and what is not fair
o Tip of iceberg: clothing, food, language, rituals
o Rest of iceberg: unconscious rules, assumptions, fairness, ethics, conception of justice, definition of sin - Culture shapes experiences of illness, healing, death, dying, and care
2 main reasons to pay attention to culture in healthcare
1) Understand distribution of disease
o People grow up and learn certain behaviors and practices that they view as normal or not harmful (e.g. smoking, teen pregnancy)
o Understand values, practices, and family structures that are acting as barriers to improved health outcomes
2) If do not pay attention in multicultural Canadian society, will not provide good care → suboptimal care
o Respect people’s rights to cultural beliefs _________________
o Affects how people report and express their symptoms
E.g. Latinos express pain symptoms in stomach cancer differently
o Women will say they have an “ache”, which delays testing and diagnosis
o Men say pain feels like dying
o They experience the pain differently
o Maybe social norms where women are not used to talking about their pain and suffering; women maybe more used to getting cramps
o Hindus don’t want to take pain relief because they believe that they are supposed to experience them → because of something in their past life, or a test resulting in a better outcome in their next life
How culture impacts patient/ family
- Responses to symptoms, naming of symptoms
- Meanings attributed to illness, treatment, dying
- Communication styles:
• Emotional expression
• Deference vs active engagement
• Difficult family → maybe family is grieving loudly, but that may be how they think they are expected to act because of their culture - Decision-making processes, treatment decisions
• Telling the truth → patient may not want to tell family to protect them and decrease stress → encouraging them to tell family
• Patient decides who gets a say in their treatment - Medical info preferences
- Culturally competent care means patient-centred care
- Case with Jehovah’s witness where parents denied their child a blood transfusion after an accident and killed child
How we as a culture perceive aging and dying = a social determinant of health
- Different diseases/ illnesses are not seen the same way around the world
- Breast augmentation/ reduction more common because of our society, not the boom of cosmetic surgery
- Sex realignment surgeries are possible and paid for by Canadian government
Social suffering
- Geographies of suffering are uneven and connected to inequalities
- Structural violence – violence that is not acutely experienced as physical; structural violence is systematic inequalities that harm people’s sense of well-being
• Back and forth between how you feel psychologically and what happens physiologically
• Lots of impacts from chronic stress from daily life
• Social suffering term introduced 30-ish years ago by anthropologists
o Perceptions of pain is never equally distributed in society - Feelings of suffering are experienced disproportionately → people who are economically marginalized feel it more
- Suffering that is lived as a collective rather than individual reality
- Linked to living conditions and/or socially entrenched
inequalities - Wounds individual and social body at once
Social stresses somatized = written on body
- Sickness as a “language of the organs through which nature, society, and culture speak”
• Anthropologists Margaret Lock and N. Scheper-Hughes 1991 - Soma – Greek for body
- Social stresses are written into and onto the body
• Do not just embody your culture, also embody stressors in your life - Illness does not reside in your body → also impacts people close to you
• Someone in household with depression = affects others in household and close ones - Distribution of fear, pain → all are forms of suffering; reflects inequalities in access to resources, socials status, and burdens of work
• Less time to relax, restore your body, sleep → layers of problem take bigger toll on your body
Suicide and first nations
- Suicide and self-inflicted injuries are the leading causes of death for First Nations youth and adults up to 44 years of age
• 2nd cause of death in Ontario for this age group with car accidents being first - Rate of suicide for First Nations male → 126/ 100 000
• 5 x national average - Rate of suicide for First Nations female → 35/ 100 000
• 7 x national average - Rates can be up to 12x higher in the North and Nunavut
- Called a health crisis/ emergency in the North
- Social determinants approach to suicide in indigenous communities requires attending to:
• Historical significance
• Food insecurity → has psychological impact and has link to colonialism
• On reserves → social separation and segregation as well as sense of being other; discrimination and loneliness → get internalized and can add to suffering
social determinants approach to suicide in indigenous communities
- Direct and indirect trauma of colonialism
- Suicide as a means a form of communication and connection in the face of limited other opportunities