Ethics Flashcards

1
Q

Note keeping:

What does SOAP stand for in problem orientated medical notes?

A

SOAP:
Subjective detail given by patient
Objective findings of clinician including investigations
Assessment of hypothesis formulated
Plan of management including therapy and referral

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2
Q

Note keeping:

Why keep notes? including referrals

A

• Aide memoire for clinician
• Help facilitate accurate and effective communication with other healthcare professionals
• Enable patients to participate with own healthcare - patients may see them
• For clinical governance
• Legal record
○ 40 % of legal actions are indefensible bc of poor quality of notes
○ 20% of cases are reported to be difficult to defend bc of poor quality of notes

Including with referrals:
· You cannot rely on the patient to do your job in liaising with other health professionals
· Letters should allow healthcare professionals to pick up care seamlessly
· Give idea of degree of urgent

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3
Q

Note keeping :

What is the four fold duty with prescriptions

A

· If you sign it even on advice of another- you are legally responsible
· Four fold duty:
○ Correct name and drug
○ No CI
○ Correct dose and directions given
○ Provision of appropriate monitoring and follow up

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4
Q

Note keeping:

What should students do with notes, and what about advise given over the phone?

A

· Student notes
○ Students can usually add to health records
○ But check with HCP usually valued
○ Make sure you indicate status- VERY CLEARLY
· Advice on phone
○ Write it down
○ Studies show that advice that was believed to be given is not what is acted on
○ Legally still liable

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5
Q

Note keeping:

What are the 10 commandments of note keeping (Norwell’s)?

A

· Legible
· Date/time of consultation
· Signed by name/printed underneath signature
· Use of abbreviations only approved
· Never alter or disguise entries
· No insulting or humorous comments
· Check everything is written under your name
· See and evaluate notes thoroughly before filing
· Do not dispose of notes
· Understand the law relating to access to records

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6
Q

Note keeping:

Who owns health records public health vs. private health service?

A
→ Public health service 
		○ DOH owns records 
		○ Patients do have legal right to access in most cases 
	→ Private health service 
		○ Depends on the contract 
	        ○  Often owned by client
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7
Q

Note keeping:
What are some examples of groups of people who want access records?
Who can access them? i.e when can media, or children etc

A
· Patients (Adults/children) (competent/incompetent) 
	· Health care professionals 
	· Healthcare students
	· Researchers 
	· Relatives 
	· Lawyers 
	· Police 
	· Social services 
	· Insurance companies or employers 
	· The media 
        · The death patient 

Adult Competent Patients: can access unless serious harm or relates to another person
Incapacitous adult: perhaps (and those with an LPA in England/Wales can too)
Children: complicated!
HCPs: Patients can constrain clinical info between team [GMC para 10 “Confidentiality”] but unusual and unhelpful
Relatives: no special rights; role of best interests
Lawyers: consent necessary if not the pts lawyer.
Police: complex (usually serious cases only)
Social Services: child protection
Media/Insurance: ONLY with consent of patient!
The dead: Not very easily!

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8
Q

Note keeping:
What is the GMC’s view on patients having a moral/legal right to deny access to some health professionals and/or students?

A

· Must respect the wishes of patients who object to particular personal information being shared within the healthcare team or with others providing care, unless disclosure would be justified in the public interest
· If a patient objects to disclosure that you consider essential to the provision of safe care, you should explain that you cannot refer them or otherwise arrange for their treatment without also disclosing that information
Provision of safe care is a bit of a contradiction healthcare and patients both have access- it is unclear what to do

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9
Q

Note keeping: what are key sources for records and the law:

A

· General data protection regulation (GDPR) regulation EU 2016/679 adopted april 2016 and entered into application in may 2018
· Replaces all data protection legislation in EU member states
· Data protection act 2018 is the Uks implementation of GDPR
○ Healthcare records are more sensitive information- extra legislation
○There are data protection principles that those who are responsible for using personal data must follow

There in particular is stronger legal protection for things like health which are sensitive information

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10
Q

Note keeping: what are data protection principles (GDPR 2016, DPA 2018)

A
  • used fairly, lawfully, transparently
  • used for specified, explicit purposes
  • used in a way that is adequate, relevant and limited to only what is needed
  • Accurate and where necessary kept up to data
  • Kept for lo longer than is necessary
  • Handled in a way that ensures appropriate security, including protection against unlawful or unauthorised processing, access, loss, destruction or damage
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11
Q

Personal responsibility:

What does the NHS constitution for England (2015) say about personal responsibility

A

Patients and the public you responsibilities- “NHS belongs to all of us, there are things we can all do for ourselves and for one another to help work effectively and to ensure resources are used responsibly”
“Please recognise that you can make a significant contribution to your own and your families, good health and well being and take personal responsibility for it”

Compared to other countries like Japan, Germany and the USA- the UK have done the least in regard to personal responsibility

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12
Q

Personal responsibility

What is the empirical premise for establishing moral responsibility for health claim?

A

Life choices–> health problems (note has to apply to a particular patient and a particular problem to ground a case for allocation/no allocation of healthcare resources for this particular person

Factual claim i.e behaviour X causes diseases Y- we must know that it is true, and we must have evidence- this takes a long time

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13
Q

Personal responsibility

What is the metaphysical premise for establishing moral responsibility for health claim?

Note these can be applied to defend your position in the cases about 1 transplant

A

People are free with regard to engaging in the behaviour resultant from health related life choices
This is hard to prove
Freedom of will- if you want to end up with personal responsibility then you must demonstrate free will

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14
Q

Personal responsibility

What is the epistemological premise for establishing moral responsibility for health claim?

Note these can be applied to defend your position in the cases about 1 transplant

A

People have sufficient information and understanding of the association between behaviour and its consequences and thus about to make an informed choice
Ensure that people have sufficient information about the risks- they do not need to understand it

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15
Q

Personal responsibility

What is the rationality premise for establishing moral responsibility for health claim?

Note these can be applied to defend your position in the cases about 1 transplant

A

People have capacity to make decisions on the basis of reasons or are reason responsive
What would it mean to be sufficiently rational for the purposes of moral responsibility- consider cases such as addiction
Ensure that people have reason responsiveness- have the capacity to see and understand the +/- but be able to process and make decision responsive to reason

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16
Q

Personal responsibility

What are the 6 premises for establishing moral responsibility for health claim?

A
  1. Empirical
  2. Metaphysical
  3. Epistemological
  4. Rationality
  5. Normative
  6. Normative action guiding
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17
Q

Personal responsibility

What is the normative premise for establishing moral responsibility for health claim?

A

People who are free, able to make sufficiently informed informed choice and rational are morally responsible for their decisions

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18
Q

Personal responsibility

What is the normative action guiding premise for establishing moral responsibility for health claim?

A

People who are morally responsible should be held accountable (e.g bear some cost)

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19
Q

Personal responsibility

What is the GMC’s professional guidance in regard to personal responsibility?

A

You must NOT allow your views about a patients lifestyle, culture, beliefs, race, colour, gender, sexuality, age, social states or perceived economic worth to prejudice the treatment you offer, you must not refuse or delay treatment because you believe a patients actions have contributed to their condition

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20
Q

Personal responsibility

What is the legal position in regard to personal responsibility?

A

LAW: not v. clear
Likely that if doctors were to deny access of healthcare to patients on the grounds of personal responsibility that they would be acting unlawfully
However taxing products e.g tobacco is lawful

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21
Q

End of life:

What is CPR and what is DNACPR

A

CPR: Emergency procedure for people in cardio-respiratory arrest
DNACPR: Binding legal document that states that resuscitation should not be attempted if a person suffers cardiorespiratory arrest
Must be witnessed, signed, dated
Patients must have capacity and if not then best interests used

here is an important philosophical aspect to this as media perceive CPR has being a miracle, therefore when CPR is not done, it can be thought of as a decision that the person should die/not be alive
Just b/c old does not mean that should have DNACPR - some situations where older person is fit and healthy and does not require a DNACPR just the same as someone younger and very unwell may need one

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22
Q

End of life:

When should a DNACPR be implemented?

A

· CPR is not likely to be successful
· Patient is mentally competent and does not want to be resuscitated
· Lacks capacity but has a legally valid advanced directive (see also lasting power of attorney) stating they do not want CPR
· Resuscitation is not in the best interest of the patient b/c the quantity/quality of life of patient following CPR is likely to be short/poor

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23
Q

End of life:

What’s the deal with futility and CPR?

A

· Technically futile treatments is a treatment that simply will not work
· Sometimes CPR is futile in literal sense I,e no chance of success
· However the term futile is often used even when treatment may achieve some goal
· How can we decide what is viable quality of life after CPR if people do survive *which is low chance, and can be traumatic with significant injuries
· Futility must be defined relative to the aim:
If goal is complete health then CPR is often futile
If goal is prolongation of life for a few hours/ days then CPR is often not futile

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24
Q

End of life
What is the deal with DNACPR and competent patients?
What should you do with patients under the age of 18?

A

Competent adults have the right legally and ethically to refuse treatment
· This includes the right to refuse life saving treatment
· Therefore competent adults have the legal and moral right to refuse CPR and a DNACPR order
This right to refuse consent to treatment is vital to protect patients autonomy

DNACPR forms on behalf of those under 18 years of age, completed by someone else – even though those under 18 are not able to refuse life saving treatment, their wishes should still be considered when discussing DNACPR.
The treating doctor would take these wishes into account when deciding on this course of action.
For example, some children with long term leukaemia are expert patients in what they are going through, and what they are willing to accept in regards to intensive and sometimes traumatic treatments, sometimes they are tired and don’t wish to continue treatment and this should be respected as much as is feasible.

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25
Q

End of life:

What do doctors legally have a duty to do if they want to place a DNACPR on medical notes?

A

Doctors now have a legal duty to (usually) consult with and inform patients if they want to place a DNACPR order on medical notes, the Court of Appeal in England ruled e.g the case of Mrs. Tracey with lung cancer who was involved in RTA- then was put on DNACPR

It is inappropriate (and therefore not a requirement of article 8 ) to involve the patient in the process if the clinician considers that to do so is likely to cause her to suffer physical or psychological harm- but must be sufficient!

The Ruling - breach of article 8 procedural obligation to involve Tracey before first notice completed- grant a declaration against trust that it violated Tracey;s article 8 right to respect for private life in failing to involve her in the process which led to the first notice.. Since a DNACPR decision is one which will potentially deprive the patient of life saving treatment, there should be a presumption in favour of patient involvement. There needs to be convincing reason not to involve patient

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26
Q

End of life

What is the deal with DNACPR and advanced statements

A

· Competent patients can issue advanced decisions giving directives as to which treatment they do not wish to get if they become incompetent at a later state
· An advanced statement can include a statement to the effect that resuscitation should NOT be attempted
This decision is LEGALLY binding (subject to some caveats)

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27
Q

End of life

What’s the deal with DNACPR and incompetent patients?

A

· When incompetent, physicians must decide whether to issue a DNACPR order on the basis of best interest
· Questions:
Can it ever be in a patient’s best interest not be resuscitated?
Is this is the same as saying that it is the patients’ best interest to die?

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28
Q

End of life

Winspear case with incapacity and DNACPR

A

Recent case of incapacity

1. In order to make a fully informed decision, where it is both practicable and appropriate they must discuss the patients' situation and the decision with those close to patient (subject to any confidentiality restrictions expressed if, and when the patient has capacity)  2. Where both practicable and appropriate, they should delay contacting those close to patient to do this. Of note, in the recent judgement it was stated by the judge that 'a telephone call at 3:00am may be less than convenient or desirable that a meeting in working hours, but that is not the same as whether it is practicable'
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29
Q

End of life

What are the risks/benefits of CPR?

A

Primary benefit: is chance of extending life however survival rates are low
CPR: also invasive and includes the following risks:
• Rib/sternal fractures
• Hepatic and splenic ruptures
• Prolonged ITU care (including ventilation and dialysis)n
• Brain damage following hypoxia
• Traumatic death

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30
Q

End of life
What are some practical aspects of DNACPR orders
What are some problems associated with DNACPR orders

A

If a DNACPR order are to be used the following points must be adhered to:
• Effective recording of DNACPR decision in a form that is recognized by all those involved in giving care
• Effective communication and explanation of DNACPR decisions (where appropriate) with the patient
• Effective communication and explanation of DNACPR decisions (where appropriate and with due respect for confidentiality) w/ patient’s family, friends etc
• Effective communication of DNACPR decisions b/w healthcare workers and organizations involved with the patient

Practical problems:
○ Awareness and understanding of guidelines is poor
○ Many DNACPR orders are made w/o adequate communication to patients (or family)
○ Health professionals are often unaware that DNACPR orders apply to CPR only
○ Discussions relating to DNACPR orders are often not adequately documents in notes
○ Senior health care professionals should be making decision regarding DNACPR but not always available when decision must be made

There are various polices on this in each hospital!

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31
Q

End of life
What is the deal with advanced decisions, what are they, why are they advocated, and why are they opposed? what is the legality of them (what act)?

A

• Oral or written statement made by a competent individual about how they would like to be treated in the future, if they happen to fall ill and are no longer competent to make decisions about their health care
• Advanced decisions= advanced statements= advanced directives= living wills
• Why are they advocated and why are they opposed?
○ + Extend patient autonomy
○ + improve patient welfare b/c patient will be less anxious about the possibility of unwanted treatments
- What healthy ppl think they will want when they are ill is not what they want when they are ill
- Not specific enough
- People may change their mind but not communicate
- Problems of personal identity
Legality of them:
○ Mental health capacity act 2005: advanced decisions are legally binding and must be respected (subject to important caveats)
○ Failure to adhere to patients wishes as expressed in a valid advanced decision may lead to a charge of assault or battery

32
Q

End of life

What are lasting powers of attorneys?

A

Lasting power of attorney: capability to make decisions as the patient would, it is assumed they would understand the patient’s wishes. If the last power of attorney starts to make decisions which do not appear to be in the patient interest then a legal investigation and challenge would be justified (e.g. they are eager to withdraw potentially beneficial treatment in the chance of getting inheritance, sometimes things can seem wrong and should be explored)

33
Q

End of life

What are the legal caveats of advanced decisions, when are they not valid?

A
  • Before losing capacity if the individual annuls the advanced directive
    • There is the evidence that the patient has changed his mind regarding the advanced directive
    • The advanced directive does not refer specifically to the situation at hand
    • There are reasonable grounds for thinking that circumstances now exist, where the patient did not anticipate, and which would have affected the patients decisions had he anticipated them
    • The patient has created a lasting power of attorney since the advanced directive was written
34
Q

End of life
What are the issues of advanced decisions? e.g case Mrs. Y admitted to ward with pneumonia, severely demented, double incontinency, you are about to prescribe AB when daughter termns up claming that mother started in the past that should would not want to be treated if she were in this position, would rather die in dignity
- Do you prescribe AB?
- Do you think oral living will is legally valid in this case?

A

· Continued to be poorly understood by medical professional (only 49% of GPs knew directives had a legal force if porperly drafted)
· Policies exist in increasing numbers of trusts, but are people aware of them
· Polices are meaningless without sufficient training on advanced directives for all staff

35
Q

Research

Whats the deal with the history of ethics and research and what are some issues now?

A

Historical cases of research that has been carried out with little ethics e.g Nazi’s research, willbowbrook hepatitis experiments (60’s- in children in care given hepatitis), Pavlov’s conditioning experiments
Lead to introduction of rules and regulations
Argument now is that there are too many rules and this makes research harder to carry out

36
Q

Research

What are some international/national professional guidelines?

A

Numerberg code (1947)/Declaration of Helsinki (1964)/GMC guidelines that apply to research

Even though we had these declarations/codes we still had this
Self regulation of the professionals were not good

37
Q

Research

What are some legislation, and criminal and common law related to research?

A

Legislation:
○ DPA (data protection act) 2018/HTA (human tissue act) 2004/ MCA-mental capacity act (need consent) 2005
○ Medicine for human use (Clinical trails) regulations 2004

Research is regulated in Criminal law and common law
○ Cannot administer ‘noxious substance’ unless this part of the ‘properly approved research’ with proper consent
Negligence law in relation to consent is applied to research

38
Q

Research

What do you need to consider about validity with research?

A

· Scientific validity
○ Is the research question important?
○ Is the research relevant?
○ Is the methodology appropriate?
○ Why is conducting research that is not scientifically valid (and which cannot be published) unethical
It Exposes people to risk for no good reason
It Involves spending resources that could have been used elsewhere

39
Q

Research

What do you need to consider about consent with research? Threats to voluntary

A

MUST BE VOLUNTARY, INFORMED, CAPACITY TO BE VALID
Must be voluntary and informed by someone with capacity (not required if data anonymised)
Note that this is more stringent than in clinical practice a signed consent form is NOT sufficient
Threats to voluntariness:
- When payment is made to participate
- Those with a terminal illness i.e may feel grateful or sense of duty, fear or rejection/withdrawal of care, a misconception perception that participation may be bringing therapeutic treatment
- Healthcare students
- Incentive issues- should research pay money? Giving up their time, would get participants, but it may mean that patients are more likely to do a test without reading the consent- should you only pay expenses or more than expenses? (expenses- is not really controversial), may give disproportional population

40
Q

Research

What do you need to consider about consent with research? Threats to informed

A

MUST BE VOLUNTARY, INFORMED, CAPACITY TO BE VALID
Must be voluntary and informed by someone with capacity (not required if data anonymised)
Note that this is more stringent than in clinical practice a signed consent form is NOT sufficient

Threats to informed:

  • Perhaps information overload (more than is given to patients)
  • Needs to be in a form that participants will understand
  • Difficult to explain some concepts like randomisation
  • May also not understand the burden
41
Q

Research

What do you need to consider about consent with research? Threats to capacity

A

MUST BE VOLUNTARY, INFORMED, CAPACITY TO BE VALID
Must be voluntary and informed by someone with capacity (not required if data anonymised)
Note that this is more stringent than in clinical practice a signed consent form is NOT sufficient

Threats to capacity:
- Is research in the best interest of the patient and if not how can we justify it? i.e regulations have meant that it is really difficult to do research on people like AD, or mental health individuals so most research is on healthy young people
- If there is no capacity MHU (CT) regulations require (2004)
That consent must be obtained from a ‘legal representative’ (e.g an adult close relative’
That research must be likely to benefit the patient or other people who suffer from the same condition
That efforts are made to gain consent and that any sign of dissent should be taken seriously

  • Consent vs. assent
    Consent is legally valid- legally valid
    Assent is an agreement but no legal force
    If you have participants who do not have legal capacity - they may get consent, but if lack assent then there is ? Of whether should do it
    E.g Alzheimer’s patient got consent but got distressed and lacked assent- therefore doing the research was unethical
42
Q

Research

What do you need to consider with confidentiality

A

Participants have a legal right to have their confidentiality protected by researchers
The data protection act 1998: requires all data (especially all sensitive data) be adequately protected

43
Q

Research

What do you need to consider with +/-

A

In general in research the benefit must be assessed to outweigh the risk even if the patient has agreed to participate.

but how much risk is acceptable is debatable
Benefits are usually public
Risks are usually to the individuals

44
Q

Research

What should we consider with equipoise

A

For research to take place there needs to be genuine uncertainty that the treatment will have a positive effect
But sometimes we are not after this we may want to examine this e.g more tolerable treatment
Trials are often stopped once benefit is found as equipoise is no longer met.

45
Q

Research

What should we consider with placebos?

A

If a treatment is available can a placebo ever be justified.

They are accepted when there is no empirical treatment or the treatment given does not have therapeutic effects

46
Q

Research

Do we have a duty to participate in research?

A

Given the vast majority of us benefit from medical research, do we have a moral duty to volunteer for research? If we fail to do so are we not guilty of free-riding on other peoples altruism?
If we do not should be have lower priority when it comes to getting a treatment?
Principle of reciprocity

47
Q

Research

Who needs to approve all research?

A

· National research ethics service (NRES) part of the NHS health research authority (HRA)- triages research proposals. All proposals needing review are examined by a REC
· RECs: research ethic committees
○ Are local (LREC) or multi centre (MREC)
○ Have 12-18 members (membership must be balanced and include lay people)
Offer ethical review but do not give legal advice

48
Q

Research

What are some issues about publication ethics?

A

· Encapsulates a whole range of issues including:
○ Pressure of publish or perish culture- Various retracted papers
○ Biased trails and biased publications
○ Potentially problematic pharmaceutical involvement and perverse incentives
Should we have journals for non significant results? Should we have biased trails?

49
Q

Research

What are some issues re animal research

A

· All drugs licensed for use in Britain’s have been tested on animals
· The number of experiments has been declining (70s-90s) but is now increasing again
· 100 million animals used worldwide
· 52% in medicine or veterinary research, 24% for fundamental scientific research
· Rodents eg. Rats are most commonly used 84%
Research with great apes, gorillas, chimps, orangutans and bonobos were banned in 1998

· If it is morally unacceptable to perform certain research on humans, why is it acceptable to perform the same research on animals? -Moral status and superiority? Consent What is the criterion which distinguishes animals from humans? Is this criterion a morally valid one?
50
Q

Research

What are the 3R’s of ethical animal experimentations?

A

· Replacement: non animal methods to be used where possible
· Reduction: the number of animals used should be kept to a minimum
Refinement: smallest amount of pain and distress should be caused to animals and should be caused only for justifiable purpose

51
Q

Research

What is the animal research legislation

A

· The animals (scientific procedures) act 1986:
· Regulates the use of all ‘protected’ laboratory animals where research procedures might cause: pain, suffering, distress, or lasting harm
· Provides a special protection for primates, cats, dogs, horses
· Requires that there be an ethics committee in institutions

Uk has the tightest system of regulation in world- house of lords select committee (2002)
Under the 1986 act: still legal for animal in lab to be unnaturally caged for entire life, poisoned, deprived of food, water, or sleep, applied with skin and eye irritants, subjected to psychological stress, deliberately infected with diseases such as cancers and AIDs, brain damaged, paralysed, surgically mutilated, irradiated, burned, gasses, force fed, electrocuted, killed

52
Q

HIV

What are some facts about HIV?

A

92% are diagnosed this still means that 1/12 in the UK do not known they are have the virus
98% of those with HIV in UK are on treatment
97% of those are treatment are virally suppressed- cannot pass the virus on
· 90% of people accessing HIV care have acquire it through sexual transmission
% of people accessing HIV care who acquired HIV through heterosexual sex is roughly the same as the proportion of people who acquired HIV through sex between men
AGE- Cohort is growing older therefore going to have more health condition- prone to things like oestoporosis, cancers therefore be proactive to take care of health
AE in the St Georges- picked up when doing blood tests- this is OPT OUT
U= U undetectable undetectable

53
Q

HIV

What questions do you want to quantify risks?

A
· Reasons/benefits 
	· Identify/quantify risks 
	· Seroconversion period 
	· Capacity to deal with result
	· Expectation of results 
	· Support networks 
	· How/when results given
54
Q

HIV

What is the role of healthcare advisors, and talk about confidentiality

A

Health advisors: used to be contact tracing then counselling
PARTNER NOTIFICATION, counselling and sexual health information

If they tell you they can’t- you give the health advisor permission they will tell them
· Very rare to break confidentiality

If working as GP patient not on treatment, viral is high- wife comes to service, and do not condoms and not told them- may have duty of care

If the person were only patient- would try and work with them to get them to tell

  • Legal cases - explain treatment
  • Most people will notify
  • Partner on PREP or them on treatment is way to prevent

Some patients do not want their GP involvement- they must be informed that the GP may get information online
• Other specialities if referred may see it and accidentally write to their GP
Address why you do not want them to find out? - maybe try to say something like why do you not want to tell? What would you tell a friend?

55
Q

HIV

When would you break confidentiality in HIV

A
  • If a court requests the information.
  • In some cases, if the police request the information.
  • If a doctor believes that someone with HIV is putting the life of another person in danger, the doctor may have the right to disclose information to the person in danger. This can only be as a last resort, and after telling the person with HIV that confidentiality will be broken.
56
Q

HIV

What is Prep?

A

PrEP- taken on daily basis would not get HIV - and have unprotected sex
Often taken privately online
Long waiting list
Large increase of syphilis and gonorrhoea
Now may be injectable given once a month
Non adherence is strong: stigma, mental health problems, community issues

57
Q

HIV

Some key groups which are hard to deal with HIV, is HIV treatment free, what is CHEM SEX?

A

Transition groups are hard - legal right to remain, under psychiatry, homeless, mental health issues, learning difficulties
ALL HIV treatment is free
CHEM SEX is becoming more prevalent

58
Q

HIV

What is HIV anxiety?

A

Repeated negative test/investigations
Low risk sexual history
Convert/guilt inducing sexual activity
High levels of anxiety/obsessive behaviour

59
Q

HIV
What should you consider in this patient?
Ade is a 35 year old Zimbabwean woman who declined HIV testing during antenatal care and has been referred to CYC-courtyard clinic for further discussion. She is 4 months pregnant and is worried that if she is HIV+ her husband will leave her?

A

Possibility that positive
Talk about protecting baby Stigma
Relationship
Window periods
Act fast
V important she starts rx IF positive
Explain the fears - and tell her about confidentiality
If she was tested- would not have to tell husband immediately
If she does not want to be test- special case study -if there were other issues - we are worried we have to discuss with safe guarding and legal team
Work with individual to tell them how to disclose
Always think about domestic abuse

60
Q

HIV

Why are people scared to tell about HIV? How do you address this?

A

· Fear of rejection
· Fear of being judged- sexually acquired/vertical- therefore disclosing mother’s status
· Fear of being ostracised by friends/community/family
· Personality type- a person who has in the past kept personal issues private
· Lack of acceptance of one’s own HIV status
· Fear of loss of control of own private information
· Concern confidentiality may be breached
· Stigma- undesirable difference that undermines a personal identify- internalised

Explain how it is manageable and live normal life
Talking about HIV: is a process, can improve relationships with family, partners, peers, healthcare professionals, less secrecy, not living in fear- taking control, increased aherence, better mental and physical health
NOT TELLING- may feel safer but it is potentially more damaging: social and physical isolation, risk of transmission, poor adherence, stress, anxiety

61
Q

HIV

How should you give results?

A
Giving HIV+ result:
	· Be prepared 
	· Give immediately 
	· Allow space
	· Do not make assumptions
	· Clarify understanding 
	· Avoid information overload 
	· Assess self harm risk
	· Arrange follow up support 

WHAT will reaction be? - SHOCK, anger, fear, denial, guilt, fatalism, relief, acceptance, grief
Loss of: control/independence, productivity/parenthood, health/life, relationships/libido, identity/meanings, hopes/dreams
They may think they can never have sex again, or never have children- it is about addressing this fear

62
Q

HIV

What are the 5 stages in the Kubler ross model?

A
  1. Denial
  2. Anger
  3. Bargaining
  4. Depression
  5. Acceptance
63
Q

HIV
What should you consider in this case?
Adam is a 48 year old gay man who has been HIV positive for 5 years. He had UPAI (unprotected anal intercourse) last night with his long term boyfriend who is aware of his HIV status. Adam also regularly attends parties where he has UPAI with numerous casual partners but does not disclose his HIV status

A
  • Other conditions can be passed on - should have regular screen
  • Is he on regular medication? If his viral load is undetectable
  • GAY MEN: have higher risk of mental health risk - consider his mental health and emotional issues

Ongoing counselling: risk reduction, partner notification, social/legal issues, relationships, treatment, acceptance

64
Q

Global health issues

What are the ethical basis for helping people?

A

Utility – poor, sick people have a greater need for healthcare and therefore should have more access
Rights - Everyone has the right to basic health care and so there is a duty to provide this
Justice – The wealthy of the world harm the poor and therefore have a duty to provide healthcare to rectify this harm

65
Q

Global health issue
• How many people live on less than $10 per day?
How many people live on less than $1 per day?
What % of the total world income is earned by the top 5% and the bottom 5% respectively?
What is the life expectancy in Japan and Mozambique?
What % of maternal deaths occur in low middle income countries?
In Subsaharan africa how many child psychiatrists are there?
The poorest 5% of the global population are served by how many of the world’s population?

A

80%- restrictions on people accessing medicines- essential medicines
20%
35% and 0.5%
82 and 41- even in the UK- dorset 82 and glasgow in 70s- social determinants of health
90%
The same number as in the whole of california
2%

66
Q

Global health issues

What are the two key normative issues?

A

Do we have a duty to help or it is a case of charity?
If something is a duty is not options- legally and morally
In providing health we have a duty - e.g refugee, migrant healthcare
Who are we exactly?
US VS. THEM - reflects a power dynamic- sometimes good intentions lead to bad outcome

67
Q

Global health issues

What is the 10/90 gap?

A
  • 10% of the world expenditure on health is devoted to the problems that primarily effect 90% of the world.
  • Most people die of diseases for which we already have treatment – they just do not have access to this treatment
  • Most new drugs are aimed at those that need medications the least
68
Q

Global health issues

What does Universal declaration of human rights article 15 state?

A

’ everyone has the right to a standard of living adequate for the health and wellbeing of himself and of his family, including food, clothing, housing and medical care, and necessary social services, and the right to security in the event of unemployment, sickness, disability, widowhood, old age, or the other lack of livelihood in circumstances beyond his control’

69
Q

Global health issues

When on way to class wearing a suit you see a child drowning do you save the childs life (ruining suit and be late for class) or walk on by?

What is the difference between the photo of the child who is starving in africa and above?- this was singers’ challenge

Now as a consultant you are driving to work one day- as you reverse you hear a splash you see a child drowning and think you must have knocked him while reversing- What do you do?

A

This is pogge’s challenge: If you cause harm to someone you have a greater duty to rectify the harm which was caused. The global economic system harms the poor (e.g via unjust trade tariffs and internal subsidies) and therefore ‘we’ have an obligation to provide compensation - that is how he extends that example even if was it an accident

70
Q

Global health issues
What is an essential medicine? When is the list updated, how many medicines are on it? What % have access to affordable essential drugs, how many lack access?

A

• The WHO defines essential medicines as those that satisfy the priority health needs of the population
• The list of essential drugs is updated every 2 years
375 medicines - each country has their own one

  • 69% have access to affordable essential drugs
  • 1.9 billion lack access to essential drugs
  • There are complications e.g poverty and social factors to get these
71
Q

Global health issues

What are big pharmas?

A

• Bio tech, pharmaceutical, and medical devices, companies are the major players on the global markets. This is partly because in the developed world- about 10% of GDP is spent on healthcare (other countries spend only 2%)-
Many of these companies have now merged over the last few decades to create giant multi national companies (big pharma) e.g Johnson and Johnson

72
Q

Global health issues

What is patenting what what is TRIPS?

A
  • A patent is a set of exclusive rights granted by a state to an investor for a limited period to time
  • TRIPS (Trade related aspects of intellectual property rights) agreement (applies to drugs after 1989) gives a 20 year protection- this is increasing the 10/90 gap

Patents prevents rival companies from producing generic companies- this encourages research/development investment and helps to maximise profits.

This also means that important drugs cannot be made cheaply for years. - so even though they are invented people cannot afford them

73
Q

Global health issues

Should big pharmas’ have responsibility?

A
  • Do pharmaceutical companies have a special responsibility? Should they ensure that profits reach the people that need them
  • Do they have an ethical obligation to increase R&D spending on ‘neglected diseases’?
Arguments for 
-	they have a lot of money and resource
-	Their whole aim is to treat disease
Against
-	They do their ‘bit’ already
-	What about other organisations that also cause damage e.g oil companies
74
Q

Global health issues

What policy solutions can be implemented

A

Bio-pharm companies are in competition with each other. It would be financial suicide for a company to concentrate on poor world diseases unless its competitors were to do the same. Thus some kind of general agreement is needed.

  • Encourage biopharm companies to make voluntary agreements to increase availability of drugs
  • Use taxation to encourage a change
  • Use legislation to force bio-pharm to research and produce different kinds of drugs
  • Use government market force to bargain with companies
  • Poggee’s solution (health impact fund)
75
Q

Global health issues

what are the 3 ethical questions we need to address about the imbalance in health and access to health care?

A

• Do we have a duty to change the balance or is it a matter of charity?
• If we have a duty, what is the basis of the obligation (utilitarianism or rights or justice?)- justify the premises- THIS IS IMPORTANT FOR EXAM
Do the bio-pharmaceutical companies have a special duty?- this is currently absent