Ethics

Question 1

Guiding principals of medical ethics

Answer 1

-Beneficence (best interest)
-Justice (fair)
-Autonomy (pt rights, confidentiality)
-Non-maleficence (avoid harm/negligence)

Question 2

Some genetic pros

Answer 2

-inform pt of heritage
-disease susceptibility
-fetal testing in pregancy
-medical interventions

Question 3

Key ethical issues

Answer 3

-WHO has ACCESS to ur genetic info
-how should it be used to CONTROL ACCESS to tx
-how do we ensure EQUITABLE ACCESS to benefits
-when does societal need require LEGAL remedy

Question 4

GINA

Answer 4

-prohibits insurers from using genetic info to alter coverage, premiums, or make discriminatory decisions
-prohibits employers from hiring/firing or requesting genetic info
-allows some exceptions
-does NOT cover life, disability, or long-term care

Question 5

Open consent

Answer 5

-subjects may grant permission to researchers to perform future studies provided they are approved