Current conceptualisations of mental health Flashcards

1
Q

Who popularised the term ‘social stigma’ in 1963?

A

Erving Goffman.
According to his theory, stigma is defined as an attribute, behaviour, or reputation which is socially discrediting. Such discrimination can lead to disadvantages in many life aspects such as personal relationships, eduction, and work. When people internalise stigma, self-esteem can diminish, leading to feelings of shame, alienation, and withdrawal.

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2
Q

When and by who was mental disorder first classified?

A

In the early 20th C by the Lunacy Commissioners’ coding schemes.

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3
Q

What new classification system was put in place by the Lunacy Commissioners in the early 20th century?

A

The new Lunacy Commissioners’ coding scheme consisted in:
1. Separated aetiology (causes) from diagnosis
2. Input from psychiatric clinicians and patients was used to identify causes.
3. Sought to establish a patient’s medical record (history).

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4
Q

What classification system followed the Lunacy Commissioners’ coding schemes?

A

In the late 1940s, British psychiatry moved to use the International Classification of Disease’s framework by WHO.

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5
Q

Explain the ICD-based classification system.

A
  1. It moved away from cause & effect dichotomies (things that are represented as being opposed or different)
  2. Recognized there can be various causes for a mental disorder
  3. Made efforts to classify new emerging disorders.
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6
Q

What happened in the mid 20th century with the proliferation of psychiatric conditions?

A

The ICD based-diagnostic system effect:
1. New diagnosis such as depression & anxiety were greeted with confusion
2. Causes were reframed as diagnosis
3. Changes in nomenclature gained resistance
4. There was a call to reinstall older terminology.

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7
Q

What happened with disorder classification in the late 20th century?

A

According to Darian Leader, ‘commodification of the psyche’ reflected an explosion in diagnoses from 1 to 2 dozen to more than 360.

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8
Q

How did disorder classification changed in the late 20th century?

A
  1. Superficial states such as shyness were pathologised as disorders
  2. Drug companies played a big part on such changes
  3. DSM-V brought back controversies
  4. Over diagnosis
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9
Q

Name whose experiment’s questioned the validity of psychiatric diagnosis?

A

Clinical psychologist David Rosehan (influenced by Laing & Szazs). He and seven more cohorts got admitted into a psychiatric hospital and then started acting normal. Seven of them were diagnosed with schizophrenia. He then published the results in the Journal Science in 1973 which had a big negative response from psychiatric professionals.

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10
Q

What was the response to Rosehan’s experiment in 1973?

A

The study’s impact was reflected in the DSM-III (1980) by the introduction of more rigorous diagnostic processes.

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11
Q

What can we infer about Rosehan’s study?

A

The experiment was actually an anthropological study on psychiatric hospitals rather than a test of diagnostic practice. However, it proved that everyday behaviour was misinterpreted and pathologised in line with diagnosis.

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12
Q

What does the term ‘stigma’ encompasses?

A
  1. Lack of knowledge (ignorance)
  2. Negative attitudes (prejudice)
  3. Discriminative behaviour (discrimination)
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13
Q

What are known imitations of stigma research?

A
  1. It is mainly focused on schizophrenia.
  2. It is based on attitude surveys and media representations of mental disorders.
  3. There is not much information about effective stigma interventions.
  4. There are few direct contributions to research by service users.
  5. Stigma theories have de-emphasised cultural factors and paid little attention to human rights and social structures.
  6. Only a few intervention studies have been conducted.
  7. Few connections between academic writings and legislation concerning disability rights policy.
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14
Q

What are the socioeconomic factors associated with stigma?

A

Poverty and access to health care. They have been long associated with outcomes of mental illness. ‘Rates of anticipated and experienced discrimination are high across countries’.

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15
Q

What can be an effective measure to reduce stigma’s socioeconomic impact?

A

Disability discrimination laws will only be effective with interventions to improve self-esteem of people with mental illness.

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16
Q

What are effective anti-stigma campaign approaches?

A
  1. Improving public knowledge about mental illness.
  2. Directing education at specific communities and professions.
  3. Increasing opportunities for social interactions between people with and without mental illness.
  4. Promoting responsible media reporting on mental health related issues.
  5. Annual events, celebrity advocates, information in social media platforms, real life testimony, etc.
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17
Q

Name two campaigns that helped long-term reduction in stigma?

A

Time to change (UK) and Mental Health Europe

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18
Q

What are The hearing Voice Network principles?

A
  1. Seeing mental health distress as human.

Seeing symptoms as experiences and using humanistic language when describing these experiences. Start asking: ‘What has happened to you?’ instead of ‘What is wrong with you?’

  1. Keeping the person in the driving seat.

Giving people freedom to define their own experience and support should be based on need, not diagnosis. Allocating alternatives for people to better understand and manage their experience with mental illness. Providing information about pros and cons of each approach (eg medication).

  1. Creating supportive communities.

Giving community based options as an alternative to psychiatry. Upscaling awareness of the casual impact of social factors.

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19
Q

Name the social factors associated with stigma.

A

Poverty, gender, racial inequalities, unemployment, deprivation, abuse.

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20
Q

What are The hearing Voice Network key challenges?

A

Identifying which interventions will change behaviours and reduce discrimination, refocusing attention on mental health discrimination rather than stigma, and focusing on actual behaviour change rather than intended change.

a. Strengthen evaluation of initiatives
b. Enable people with MH difficulties to receive legal protection, comparable to those with physical disabilities.

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21
Q

Name the main names of the antipsychiatric movement?

A

Erving Goffman—’the total institution’

R. D. Laing—rejected medical psychiatry

Michel Foucault—mental illness as an 18th
century social construct (Madness and Civilization)

Thomas Szasz—denied the existence of mental illness

Ken Kesey—conceptualised psychiatric patients as nonconformists (One Flew Over the Cuckoo’s Nest)

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22
Q

When did the beginning of deinstitutionalisation start?

A

The 1960s has been regarded as a critical decade for British psychiatry. There was a cultural and social shift that put psychiatric hospitals under the eye of many, as the discipline was being called fundamentally coercive. Also, overhauls to existing health policies and service organizations. There was a calling for large-scale asylum closures in favour of community-based services.

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23
Q

What was the first piece of research of the service user movement?

A

A collaboration between Camden Mental Health Consortium and a voluntary organisation called Good Practices in Mental Health.

There were two user-controlled research projects in the 1990s and 2000s.

  1. Strategies for living: people’s own strategies to dealing with mental health.
  2. User-focused Monitoring: Peer evaluation of community and hospital services.
24
Q

What was the first piece of research of the service user movement?

A

A collaboration between Camden Mental Health Consortium and a voluntary organisation called Good Practices in Mental Health.

There were two user-controlled research projects in the 1990s and 2000s.

  1. Strategies for living: people’s own strategies for dealing with mental health.
  2. User-focused Monitoring: Peer evaluation of community and hospital services.
25
Q

What changed the course of service user-led research into academia?

A

The creation of Service User Research Entreprise (SURE) in 2001.

At the IoPPN, SURE tests the effectiveness of services and treatments from the perspective of those with MH problems and their careers.

It is based on the premise that service user researchers have insider knowledge, in addition to conventional academic qualifications.

SURE is the largest academic department of its kind in the world.
.

26
Q

What are the differences between perspectives in the service user movement?

A

Those who call themselves service users (Europe) or ‘consumers’ (USA, New Zealand and Australia) are focused on reforming the existing mental health system, those who call themselves ‘survivors of psychiatry’ put the entire system in question, including the premise of mental illness itself.

27
Q

Name the two identities service users can have?

A

It is crucial to differentiate ‘user involvement in research’ from ‘patient participation in clinical-care planning.’ The first one is the main focus of this module and involves service users as experts by experience, peer researchers and even as researchers, neves are patients or clients.

28
Q

How is the term service user criticised?

A

Groups such as Shaping Our Lives criticised the term for:

  1. Being value-laden
  2. Implies passivity
  3. Restrictive
  4. Disregards aspects of an individual’s identity
  5. Also, it fails to capture those that qualify for support but are unwilling or unable to access it.
29
Q

Describe the three types of service users according to Hugh Mclaughlin?

A
  1. Direct: those with recent or current experience with the service providers conducting the research.
  2. Indirect: those involved in studies focused on related services outside the geographic area.
  3. Alternative: those with experience in one specific domain (e.g., breast cancer).
30
Q

How can we define user involvement?

A

A set of techniques rather than a single approach; what works with a certain population or setting might not work with others.

31
Q

What are the main elements of Service User Involvement at the IoPPN?

A

The aim is to involve service users in the whole research process:

  1. Design
  2. Data Collection
  3. Data Analysis
  4. Dissemination of results
32
Q

What does SURE stand for?

A

Service User Research Enterprise

33
Q

What is the collaborative management structure at SURE for service-led involvement?

A
  1. Comprising one conventional university researcher and one user researcher.
  2. An innovative user-focused remit (area of activity) that has generated influential studies and shaped national treatment guidelines.
34
Q

Give an example of SUREs research projects.

A

A briefing paper from the NHS Service Delivery & Organisation. SURE review investigated user and care involvement in organisational changes within mental health services, examining how users and carers have been consulted and the best way of involving them.

A pioneering used-led evaluation of cognitive remediation therapy CRT. Highlighting problems and contributing to service refinement.

First to systematically review patient opinion about electroconvulsive therapy ECT. Highlighting the significance of post-treatment memory loss and challenging official statistics of patient satisfaction

35
Q

What is the main goal of translational research?

A

Convert findings from basic research more quickly and efficiently into clinical and health care practice.

36
Q

What are the limitations around the phrase ‘bench to bedside’?

A

It oversimplifies the complex two-way process of the translational pathway, which used to be seeing as unidirectional. There is now growing recognition that knowledge and experience from the bedside must feed back into the lab in order to have long lasting results.

37
Q

Name some of the benefits of service user generated knowledge.

A
  1. Served as a bridge for the translational the gap in the research to clinic process.
  2. Improved organisational efficiency through easier implementation of findings.
  3. Highlighted areas of concern to service users.
  4. Assessed the acceptability and feasibility of proposed changes.
  5. Evaluated and enhanced the validity of outcome measures.
38
Q

What are some methods used in consumer studies (e.g., ECT)?

A

In consumers studies of ECT, for example:

  1. Patient-centred systematic reviews (exploring consumer’s perspectives, including researchers with experience)
  2. Patient-reported Outcome Measures (PROMs), a SUREs method of research that is generated entirely from the service user perspective. (discussing meds side effects or experience of inpatient care)
  3. Focus groups (discussions around a variety of topics at different stages of the research)
  4. Experts panel (one expert is drawn from a focus group and one is independent, refining and amending language and layout)
  5. Feasibility study (make sure measures are easy to complete)
39
Q

What is a ‘Discrete Choice Experiment’?

A

A research method that involves choosing the least worst side effect and inform drug developers of key side effects to avoid.

Definition by google: A discrete choice experiment is a quantitative method increasingly used in healthcare to elicit preferences from participants (patients, payers, commissioners) without directly asking them to state their preferred options.

40
Q

What are some common challenges user-led research face?

A
  1. Marginalisation of ‘experiential’ knowledge from psychiatric knowledge production.
  2. Emphasis on deficit and pathology, that served to justify segregation and institutionalisation of the ill and impaired.
  3. Suggestion that user-research is biased, anecdotal or over-involved.
41
Q

What are Michel Foucault’s arguments regarding ‘mad people’?

A

He argued that with the Enlightenment and the beginning or the ‘reason’ era, the mad were the embodiment of unreason. They were unwilling or unable to serve as labour in the Industrial revolution. If the epitome of knowledge is reason, then mad knowledge is an oxymoron.

42
Q

Name further challenges to user-led research and user-produced knowledge?

A
  1. Overcome conventional hierarchies of status of knowledge (e.g., collaborative project almost always headed by professors).
  2. Stigma and a subtle undermining of user-produced knowledge (e.g., Are you and researcher or a patient?).
  3. Service user researches may be excluded from trainings, key discussions or the dissemination of results.
43
Q

How does the evidence-based medicine rank study types?

A

Using a hierarchic system based on the strength and precision of their research methods.

At the top of the pyramid there are well designed systematic-reviews and metal-analyses.

At the bottom are lay expert opinion and anecdotal experience.

There are different hierarchies for different types of questions.

44
Q

What is the Cochrane Collaboration?

A

An international voluntary organization that prepares, maintains, and promotes systematic reviews of the effects of health care.

45
Q

What is the Recovery Model?

A

A project developed by service users in the US and the UK who wanted to avoid damaging side effects to psychiatric drugs. They also wanted to assume great self-management of their condition. Psychiatrists have criticised this model as dangerous or irresponsible.

46
Q

How has service user involvement evolved?

A

Traditional styles of confrontation and campaigns have given way to the adoption of more corporate and professional models, also the replacement of more radical ideology for a political spectrum with consumerism and pragmatism tackling stigma.

47
Q

Name some of the findings of the Mental Health Research Network (MHRN)?

A
  1. Even though services users were included in 40% of randomly selected studies there was a great variation in their input and overall impact.
  2. There were problems identified, such as lack of time and and resources as well as the absence of a shared and practical definition of ‘service user involvement’.
48
Q

What barriers did the 2002 Triveldi and Wykes analysis reported? ( ask for more info on slide 5 topic 2 week 2)

A

The analysis subjected the process of user involvement to 10 questions. (answers might be subject to hindsight bias).

They found that user involvement changes the focus of the study in its design and content.

For professionals user involvement meant:

a. More time to carry out and write up the project.
b. Higher costs as users have to be paid for consultation and dissemination.
c. Different priorities and understanding.

For users some barriers were:

a. Intimidation by academic language.
b. Regular time commitment

49
Q

What are the benefits of user inclusion within research?

A
  1. More democracy and empowerment of service users.
  2. Easier identification and prioritisation of relevant research topics.
  3. Eliciting richer data because participants are more open to share personal and sometimes stigmatising information.
  4. Service user involvement has been required and recommended by and increasing number of founders.
  5. User-led research generates more representative and robust findings.
  6. Evidence shows that user involvement increases the likelihood of a study’s success.
50
Q

What are three user involvement levels according to the INVOLVE (NIHR) Continuum?

A
  1. Consultation: more superficial or short-term, initiated by researchers.
  2. Collaboration: research and user jointly initiate the study.
  3. User-control: less common and is user-initiated.
51
Q

What dies NIHR stands for?

A

National Institute for Healthcare Research

52
Q

Name recent resources for user-control studies.

A

The creation of free online training for service users who want to do their own research or learn more about the research process. This contributes to reduce the knowledge gap between researchers and participants.

53
Q

Explain INVOLVE.

A

A national advisory group that supports greater public involvement in NHS, public health and social care research.

Has around 30 members, including health and social care service users and practitioners, carers, people from voluntary organisations, managers and researchers.

It was created in 1996 to promote public involvement and it is funded by the National Institute for Healthcare Research (NIHR).

54
Q

What is Peter Beresford’s critic to user involvement details requested from funding bodies?

A

There is pressure from funding bodies to increase user involvement. Which can be considered box-ticking and tokenism, and can be views as a move away from democracy and empowerment of service user involvement.

(Since 2005, details of user involvement activity are required by the NHS Ethics committees and funding bodies).

55
Q

Name some inclusivity limitations that still occur in user-involvement research?

A

Some minority groups often experience inferior access to support and services, or less opportunities to get involved in schemes to make their voice heard.

56
Q

What are Peter Beresford recommendation for challenging the user-involvement imbalance?

A
  1. Ongoing review and evaluation of organisational policies, processes, procedures and practices.
  2. Noting who is being included and excluded.
  3. Creating an organisational commitment.
  4. Training in equality of opportunities.
  5. Creating specific strategies for involving excluded groups, as well as new ways to work together.
  6. Gain more clarity on the issue of representation, for example, who is speaking for whom. (this is important for minority groups).
  7. Evaluate participation to asses how inclusive and diverse it is.