(2) RA 9288 Flashcards
Newborn Screening Act of 2004
RA 9288
A simple procedure to find out if a baby has a congenital disorder that may lead to mental retardation or even death if left untreated
Newborn Screening (NBS)
Tests included in the expanded NBS
Organic Acid Disorders
Endocrine Disorders
Fatty Acid Oxidation Disorder
Hemoglobinopathies
Urea Cycle Defect
Amino Acid Disorders
Integrated as part of the country’s public health delivery system with the enactment of RA9288
Comprehensive Newborn Screening (NBS) Program
___ acts as the lead agency in the implementation of the law and collaborates with other ___ and key stakeholders to ensure early detection and management of several congenital metabolic disorders
Department of Health (DOH)
National Government Agencies (NGA)
Newborn screening program in the PH include six disorders
Congenital hypothyroidism (CH)
Congenital adrenal hyperplasia (CAH)
Glucose-6-phosphate dehydrogenase (G6PD)
Galactosemia (GAL)
Maple syrup urine disease (MSUD)
National policy and strategic framework for expanded newborn screening for 2017-2030
AO 2018-0025
Guidelines on the implementation of the expanded newborn screening program
AO 2014-0045
The expanded screening will include ___ more disorders
22
NSC in Manila
NIH at UP Manila
NSC in Visayas
West Visayas State University Medical Center, Iloilo City
NSC in Mindanao
Southern Philippines Medical Center, Davao City
NSC in Central Luzon
Angeles City, Pampanga
NSC in Southern Luzon
Tanauan City, Batangas
NSC in Northern Luzon
Batac City, Ilocos Norte
When is NBS done?
24 hours from birth
Who will collect the sample for NBS?
Physician
Nurse
MedTech
Trained midwife
Proclamation no. ___ dated ___ declares ___ week of ___ as National Newborn Screening Week
540
January 20, 2004
1st
October
Proclamation no. 540 was approved by ___
Gloria Macapagal-Arroyo
RA 9288 has ___ sections
19
RA 9288 was approved by ___
Gloria Macapagal-Arroyo
RA 9288 was approved on ___
April 7, 2004
RA 9288 Section 1
Title
RA 9288 Section 2
Declaration of Policy
RA 9288 Section 3
Objectives
RA 9288 Section 4
Definition
RA 9288 Section 5
Obligation to inform
RA 9288 Section 6
Performance of Newborn Screening
NBS should be performed after ___ of life but not later than ___ from complete delivery of the newborn
24 hours
3 days
Newborn that must be place in ICU in order to ensure survival must be tested by ___ of age
7 days
RA 9288 Section 7
Refusal to be tested
T/F: a parent or legal guardian may not refuse testing even in the grounds of religious beliefs
F
According to Section ___ of RA9288, a parent or legal guardian may refuse testing as long as they have a ___ that refusal for testing places their newborn at risk for undiagnosed heritable conditions
7
Writing
RA 9288 Section 8
Continuing Education, Re-education and Training Health Personnel
The ___, with assistance of the ___ and other government agencies shall conduct continuing information on NBS
DOH
NIH
RA 9288 Section 9
Licensing and Accreditation
The ___ and the ___ shall require health institutions to provide newborn screening services as a condition for licensure or accreditation
DOH
Philippine Health Insurance Corporation
RA 9288 Section 10
Lead Agency
The ___ shall be the lead agency in implementing RA 9288
DOH
The DOH is responsible in developing the implementing rules and regulations for the immediate implementation of a nationwide newborn screening program within ___ days
180
___ shall be in coordination with the DOH for implementation of the newborn screening program
DILG
___ shall be in coordination with the DOH for the accreditation of NBS centers and preparation of defined testing protocols and quality assurance programs
NIH
RA 9288 Section 11
Advisory Committee on Newborn Screening
The Advisory Committee on Newborn is created and made an integral part of the Office of the Secretary of the ___
DOH
The Advisory Committee on Newborn is composed of ___ members
8
The chairman of the Advisory Committee on NBS is ___
Secretary of Health
The vice chairman of the Advisory Committee on NBS is ___
Executive Director of the NIH
The NBS Committee shall meet at least ___ a year
twice
The ___ shall serve as the Secretariat of the Committee
NIH
RA 9288 Section 12
Establishment and Accreditation of Newborn Screening Centers
RA 9288 Section 13
Establishment of a Newborn Screening Reference Center
RA 9288 Section 14
Quality Assurance
RA 9288 Section 15
Database
RA 9288 Section 16
Newborn Screening Fees
At least __% to the DOH’s Centers for Health Development or its future equivalent to be spent solely for follow-up services, education, and other activities directly related to the provision of newborn screening services
4
