[2] RA 9288 Flashcards

1
Q

Also known as the Newborn Screening Act
of 2004

A

RA 9288

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2
Q

Simple procedure to find out if a baby has a
congenital disorder that may lead to mental
retardation or even death if left untreated

A

Newborn Screening (NBS)

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3
Q

The _____________ acts as the lead agency in the implementation of the law and collaborates with other National Government Agencies (NGA) and key stakeholders to ensure early detection and management of several congenital metabolic disorders.

A

Department of Health (DOH)

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4
Q

What are the Six disorders of the Newborn Screening program

A
  1. congenital hypothyroidism (CH)
  2. congenital adrenal hyperplasia (CAH)
  3. phenylketonuria (PKU)
  4. glucose-6-phosphate dehydrogenase (G6PD)
    deficiency
  5. galactosemia (GAL)
  6. maple syrup urine disease (MSUD)
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5
Q

Administrative Order No. __________: National Policy and Strategic Framework on Expanded Newborn Screening for
2017-2030

A

Administrative Order No. 2018-0025

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6
Q

Administrative Order No. ________ or the Guidelines on the Implementation of the Expanded Newborn Screening Program

A

Administrative Order No. 2014-0045

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7
Q

Expanded screening includes 22 more disorders: _______ and ________

A

Hemoglobinopathies and Metabolic Disorders

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8
Q

Six operational NSCs in the country

A
  1. NIH at the University of the Philippines Manila
  2. Visayas located at West Visayas State
    University Medical Center, Iloilo City
  3. Mindanao located at the Southern Philippines
    Medical Center, Davao City
  4. Central Luzon in Angeles City, Pampanga
  5. Southern Luzon in Tanauan City, Batangas
  6. Northern Luzon in Batac City, Ilocos Norte
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9
Q

When is it done: Ideally done immediately after ____ hours from birth

A

24 hours

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9
Q

How is it done: A few drops of blood are taken from the baby’s heel, blotted on a special absorbent filter card and then sent to ______

A

Newborn Screening Center (NSC)

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9
Q

Who collects the sample for Newborn Screening

A
  1. Physician
  2. Nurse
  3. Medical Technologist
  4. Trained midwife
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10
Q

Proclamation No. 540 dated ____________ entitled “Declaring the 1st Week of October of Each Year as “National Newborn Screening Week”

A

January 20, 2004

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11
Q

National Newborn Screening Week is when

A

1st Week of October

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12
Q

National Newborn Screening Week is approved by

A

President Gloria Macapagal-Arroyo

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13
Q

How many sections does RA 9288 have

A

19 sections

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14
Q

RA 9288 was approved on

A

April 7, 2004

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15
Q

What is Section 1

A

Title

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16
Q

What is Section 2

A

Declaration of Policy

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17
Q

What is Section 3

A

Objectives

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18
Q

What is Section 4

A

Definition

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19
Q

What is Section 5

A

Obligation to Inform

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20
Q

What is Section 6

A

Performance of Newborn Screening

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21
Q

Under Section 6, shall be performed after ____ hours of life but not later than three (3) days from complete delivery of the
newborn

A

24 hours

22
Q

Under Section 6, newborn that must be placed in intensive care in order to ensure survival may be exempted from the 3-day requirement but must be tested by _____ days of age

A

7 days

23
Q

What is Section 7

A

Refusal to be Tested

24
Q

True or False:
A parent or legal guardian may refuse testing on the grounds of religious beliefs, but shall acknowledge in writing their understanding that refusal for testing places their newborn at risk for undiagnosed heritable conditions.

A

True

25
Q

What is Section 8

A

Continuing Education, Re-education and
Training Health Personnel

26
Q

Who shall conduct continuing information, education, re-education and training programs for health personnel on the rationale, benefits, procedures of newborn screening;

A

DOH with the assistance of the NIH

27
Q

Who shall disseminate information materials on newborn screening at least annually to all health personnel involved in material and pediatric care

A

DOH with the assistance of the NIH

28
Q

What is Section 9

A

Licensing and Accreditation

29
Q

The ________ and the ________ shall require health institutions to provide newborn screening services as a condition for licensure or accreditation

A

DOH and Philippine Health Insurance Corporation

30
Q

What Section 10

A

Lead Agency

31
Q

DOH shall establish the ______ on Newborn Screening

A

Advisory Committee

32
Q

Develop the implementing rules and regulations for the immediate implementation of a nationwide newborn screening program within _____ days from the enactment of this Act

A

180 days

33
Q

What is Section 11

A

Advisory Committee on Newborn
Screening

34
Q

Under Section 11, to ensure sustained inter-agency collaboration, the Advisory Committee on Newborn Screening is hereby created and made an integral part of the ________

A

Office of the Secretary of the DOH

35
Q

The Advisory Committee on Newborn Screening is reviewed ______ and recommended conditions to be included in the newborn screening panel of disorders

A

Anually

36
Q

Review and recommend the newborn screening fee to be charged by

A

Newborn Screening Centers

37
Q

Under Section 11, how many are the members of the committee

A

8 members
- Chairman: Sec of Health
- Vice-chair: Executive Director of the NIH
- Undersecretary of the DILG
- Executive Director of the Council for the Welfare of Children
- Director of the Newborn Screening Reference Center
- 3 representatives appointed by the Secretary of Health

38
Q

Who are the 3 possible representative appointed by the Sec of Health

A
  1. Pediatrician
  2. Obstetrician
  3. Endocrinologist
  4. Family physician
  5. Nurse
  6. Midwife from either public or private sector
39
Q

The 3 representatives shall be appointed for a term of ____ years

A

3 years

40
Q

The committee shall meet at least ____ a year

A

twice or 2 times a yeat

41
Q

The ____ shall serve as the Secretariat of the Committee

A

NIH

42
Q

What is Section 12

A

Establishment and Accreditation of
Newborn Screening Centers

43
Q

Under Section 12, who qualify staffs for Newborn Screening Centers

A

NIH

44
Q

Under Section 12, submit to periodic announced or unannounced inspections by the _______ in order to evaluate and ensure quality Newborn Screening Center performance

A

Reference Center

45
Q

What is Section 13

A

Establishment of a Newborn Screening Reference Center

46
Q

What is Section 14

A

Quality Assurance

47
Q

What is Section 15

A

Database

48
Q

TRUE OR FALSE:
NIH Newborn Screening Reference Center shall maintain a national database of patients tested and a registry for each condition

A

True

49
Q

Under Section 15, submit reports annually to the ______ and _____on the status of and relevant health information derived from the database

A

Committee and to the DOH

50
Q

What is Section 16

A

Newborn Screening Fees

51
Q

At least _____ to the DOH’s Centers for Health
Development or its future equivalent to be spent solely for follow-up services, education and other activities directly related to the provision of newborn screening services

A

4 percent

52
Q

What is Section 17

A

Repealing Clause

53
Q

What is Section 18

A

Separability Clause

54
Q

What is Section 19

A

Effectivity

55
Q

TRUE OR FALSE:
Under Section 16, 4% should be allocated to each DOH centers, newborn screening centers, and NIH newborn screening reference center

A

True