[2] RA 9288 Flashcards
Also known as the Newborn Screening Act
of 2004
RA 9288
Simple procedure to find out if a baby has a
congenital disorder that may lead to mental
retardation or even death if left untreated
Newborn Screening (NBS)
The _____________ acts as the lead agency in the implementation of the law and collaborates with other National Government Agencies (NGA) and key stakeholders to ensure early detection and management of several congenital metabolic disorders.
Department of Health (DOH)
What are the Six disorders of the Newborn Screening program
- congenital hypothyroidism (CH)
- congenital adrenal hyperplasia (CAH)
- phenylketonuria (PKU)
- glucose-6-phosphate dehydrogenase (G6PD)
deficiency - galactosemia (GAL)
- maple syrup urine disease (MSUD)
Administrative Order No. __________: National Policy and Strategic Framework on Expanded Newborn Screening for
2017-2030
Administrative Order No. 2018-0025
Administrative Order No. ________ or the Guidelines on the Implementation of the Expanded Newborn Screening Program
Administrative Order No. 2014-0045
Expanded screening includes 22 more disorders: _______ and ________
Hemoglobinopathies and Metabolic Disorders
Six operational NSCs in the country
- NIH at the University of the Philippines Manila
- Visayas located at West Visayas State
University Medical Center, Iloilo City - Mindanao located at the Southern Philippines
Medical Center, Davao City - Central Luzon in Angeles City, Pampanga
- Southern Luzon in Tanauan City, Batangas
- Northern Luzon in Batac City, Ilocos Norte
When is it done: Ideally done immediately after ____ hours from birth
24 hours
How is it done: A few drops of blood are taken from the baby’s heel, blotted on a special absorbent filter card and then sent to ______
Newborn Screening Center (NSC)
Who collects the sample for Newborn Screening
- Physician
- Nurse
- Medical Technologist
- Trained midwife
Proclamation No. 540 dated ____________ entitled “Declaring the 1st Week of October of Each Year as “National Newborn Screening Week”
January 20, 2004
National Newborn Screening Week is when
1st Week of October
National Newborn Screening Week is approved by
President Gloria Macapagal-Arroyo
How many sections does RA 9288 have
19 sections
RA 9288 was approved on
April 7, 2004
What is Section 1
Title
What is Section 2
Declaration of Policy
What is Section 3
Objectives
What is Section 4
Definition
What is Section 5
Obligation to Inform
What is Section 6
Performance of Newborn Screening
Under Section 6, shall be performed after ____ hours of life but not later than three (3) days from complete delivery of the
newborn
24 hours
Under Section 6, newborn that must be placed in intensive care in order to ensure survival may be exempted from the 3-day requirement but must be tested by _____ days of age
7 days
What is Section 7
Refusal to be Tested
True or False:
A parent or legal guardian may refuse testing on the grounds of religious beliefs, but shall acknowledge in writing their understanding that refusal for testing places their newborn at risk for undiagnosed heritable conditions.
True
What is Section 8
Continuing Education, Re-education and
Training Health Personnel
Who shall conduct continuing information, education, re-education and training programs for health personnel on the rationale, benefits, procedures of newborn screening;
DOH with the assistance of the NIH
Who shall disseminate information materials on newborn screening at least annually to all health personnel involved in material and pediatric care
DOH with the assistance of the NIH
What is Section 9
Licensing and Accreditation
The ________ and the ________ shall require health institutions to provide newborn screening services as a condition for licensure or accreditation
DOH and Philippine Health Insurance Corporation
What Section 10
Lead Agency
DOH shall establish the ______ on Newborn Screening
Advisory Committee
Develop the implementing rules and regulations for the immediate implementation of a nationwide newborn screening program within _____ days from the enactment of this Act
180 days
What is Section 11
Advisory Committee on Newborn
Screening
Under Section 11, to ensure sustained inter-agency collaboration, the Advisory Committee on Newborn Screening is hereby created and made an integral part of the ________
Office of the Secretary of the DOH
The Advisory Committee on Newborn Screening is reviewed ______ and recommended conditions to be included in the newborn screening panel of disorders
Anually
Review and recommend the newborn screening fee to be charged by
Newborn Screening Centers
Under Section 11, how many are the members of the committee
8 members
- Chairman: Sec of Health
- Vice-chair: Executive Director of the NIH
- Undersecretary of the DILG
- Executive Director of the Council for the Welfare of Children
- Director of the Newborn Screening Reference Center
- 3 representatives appointed by the Secretary of Health
Who are the 3 possible representative appointed by the Sec of Health
- Pediatrician
- Obstetrician
- Endocrinologist
- Family physician
- Nurse
- Midwife from either public or private sector
The 3 representatives shall be appointed for a term of ____ years
3 years
The committee shall meet at least ____ a year
twice or 2 times a yeat
The ____ shall serve as the Secretariat of the Committee
NIH
What is Section 12
Establishment and Accreditation of
Newborn Screening Centers
Under Section 12, who qualify staffs for Newborn Screening Centers
NIH
Under Section 12, submit to periodic announced or unannounced inspections by the _______ in order to evaluate and ensure quality Newborn Screening Center performance
Reference Center
What is Section 13
Establishment of a Newborn Screening Reference Center
What is Section 14
Quality Assurance
What is Section 15
Database
TRUE OR FALSE:
NIH Newborn Screening Reference Center shall maintain a national database of patients tested and a registry for each condition
True
Under Section 15, submit reports annually to the ______ and _____on the status of and relevant health information derived from the database
Committee and to the DOH
What is Section 16
Newborn Screening Fees
At least _____ to the DOH’s Centers for Health
Development or its future equivalent to be spent solely for follow-up services, education and other activities directly related to the provision of newborn screening services
4 percent
What is Section 17
Repealing Clause
What is Section 18
Separability Clause
What is Section 19
Effectivity
TRUE OR FALSE:
Under Section 16, 4% should be allocated to each DOH centers, newborn screening centers, and NIH newborn screening reference center
True
