15- Palliative care Flashcards
Palliative care
Palliative care is the active, total care of patients who disease is progressive and not responsive to curative treatment, control of pain, other symptoms and of social, psychological and spiritual problems is paramount
- For non-curative and progressive disease
- Holistic approach
- Symptoms management
Aims of palliative care:
- To affirm life but regard dying as a normal process.
- To provide relief from pain and other distressing symptoms.
- To neither hasten nor postpone death.
- To integrate psychological and spiritual aspects into mainstream patient care.
- To provide support to enable patients to live as actively as possible until death.
- To offer support to the family during the patient’s illness and in their bereavement.
Examples of diseases which use palliative care
- Cancer
- Dementia
- Frailty
- Pain management
- Ischaemic heart disease
- COPD/ PF
who provides palliative care
Doctors
- Generalists e.g. GP, hospital
- Specialist- hospice and specialist palliative care team
Nurses
Health care assistants
Family
OT/PT
Where do people die?
- Hospital- 46.9
- Home- 23.5
- Nursing home- 23.5
- Hospice- 5.7%
Hospices
- Most people who use will not die there
- People are referred to a hospice when they require specialist palliative care
- Vast majority die elsewhere
- Majority of hospice care (84%) is provided in the community
tools used to indicate supportive. andpalliative care may be indicated for a patient
- SPICT tool - supportive and palliative care indication tool
- Clinical Frailty scale
SPICT tool
clinical frailty score
- Score >7 at high risk of dying in the next year
General indicators of decline
- Unplanned hospital admission
- Performance status is poor or deteriorating
- Dependent on others for care
- Carer needs help and support
- Significant weight loss
- Persistent symptoms despite optimal treatment
- A decision to reduce, stop or not have treatment
an subjective tool to consider if patient is close to death?
Would you be surprised if this person died within the next 12 months?
recognising the dying phase
Recognising dying phase
- Reduced thirst and appetite
- Sleeping more
- Cold peripheries
- Breathing changes
e.g. Cheyne-stoke breathing
e.g. Shallow breathing
- Increased respiratory secretions - death rattle
- Skin colour changes
- Agitation/restlessness
Common symptoms at the end of life
- Pain
- SoB
- Agitation
- N+V
Palliative vs Best supportive vs End of life care: palliative
- For patients who’s condition cannot be cured
- Aims to reduced pain and distressing symptoms and prolong best quality life
- May receive palliative care alongside other therapies for treatment aiming for cure
- Does encompass end of life care – but is so much more
o Aim is to ensure opitnal quality of life - Involves holistic approach
o Symptom management
o Psychological
o Social
o Spiritual support
Palliative vs Best supportive vs End of life care: Best supportive
- ‘prevention and management of the adverse effects of cancer and its treatments’
- Includes management of physical and psychological symptosm and side effects across the cancer experience from diagnosis through treatment and post treatment
- Involves
o Enhancing rehab
o Secondary cancer prevention
o End of life care
Palliative vs Best supportive vs End of life care: End of life care
- People are considered to be approaching the end of life when they are likely to die within the next 12 months
- A portion of palliative care directed towards the care of a person nearing end of life
- End of life difficult to predict
o Includes patients whose death is imminent (expected within a few hours and days) - Focus is on maintaining quality of life while offering services for legal matters
- Aim: patient dies with dignity