Chapter.4 Fairness and Equity Flashcards
What is the appropriate Inclusion of specific groups?
Women
Children
Elderly
Appropriate Inclusion scope and objectives ?
. Researchers shall not exclude individuals from the opportunity to participate in research on the basis of attributes such as culture, language, religion, race, disability, sexual orientation, ethnicity, linguistic proficiency, gender or age, unless there is a valid reason for the exclusion.
No exclusion on the basis of their attributes like..?
gender, race, ethnicity, age and disability
Groups have been unfairly included in research because they are convenient populations like?
prisoners, students, people with limited financial resources or those in other circumstances of vulnerability
Women shall not be inappropriately excluded from research solely on the basis of ?
basis of gender or sex
their reproductive capacity, or because they are pregnant or breastfeeding
Children shall not be inappropriately excluded from research solely on the basis of ?
basis of their age or developmental stage
Research designed to improve our understanding of a wide range of aspects of ageing and the lives of elderly people is important for ?
ensuring that they stay fully integrated into society and maintain a continuing high quality of life
Elderly people shall not be inappropriately excluded from research solely on the basis
their age
a researcher seeks to involve individuals in research who do not have decision-making capacity, the researcher shall
satisfy the REB that:
the research question can be addressed only with participants within the identified group.
the research does not expose the participants to more than minimal risk without the prospect of direct benefits for them;
the research entails only minimal risk, it should at least have the prospect of providing benefits to participants or to a group
When should not inappropriately included or automatically excluded a participant in research on the basis of their circumstances?
When Individuals or groups whose circumstances may make them vulnerable in the context of research.
Researchers Responsibility
Researchers should be sensitive to the expectations and opinions of participants regarding potential benefits of the research.
Prior to the commencement of the research, researchers should formally or informally discuss these expectations with individuals and/or groups, and outline the scope and nature of potential benefits that may accrue to participants during and after the research
REB Responsibility
REBs should be vigilant to ensure that the proposed distribution of benefits is fair, without imposing undue burdens on the researcher that would make it too difficult or costly to complete research.
Researchers shall disseminate, through publication or otherwise, the analysis of data and interpretation of research results, including ?
including those that do not support the research hypotheses. The dissemination shall take place in a timely manner without undue restriction
what is ethically unacceptable in the dissemination of research results?
Any prohibition or undue limitation on the publication or dissemination of findings from research is ethically unacceptable.
What is as important as disseminating results to the research community?
Informing participants of the research results